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CT FAMILY TO FAMILY HEALTH INFORMATION CENTER
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The CT Family-to-Family Health Information Center, a project of PATH Parent to Parent/Family Voices of CT, is funded under Grant Award #H84MC21663 from the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Division of Services for Children with Special Health Needs. This funding was made available through the Patient Protection and Affordable Care Act (ACA). This Center is staffed by parents. We provide free, confidential assistance to families raising children and youth with special health needs (CYSHCN), professionals, and others.
Contact us at 1-800-399-7284 (CT only) 203-234-9554, or pathp2p@pathct.org for information about:
· Assistance to families and professional in navigating CT's health care systems
· Information, education, training, support and referral services
· Outreach to underserved/underrepresented populations
· Guidance on health programs, health financing and policy
· Collaboration with other family groups, professionals in efforts to improve services for CYSHCN
· Family/professional partnerships
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WHAT ARE TYPICAL QUESTIONS THAT A PARENT OR PROFESSIONAL MIGHT ASK OUR
A HEALTH INFORMATION SPECIALIST (HIS) HELP?
Is there a health insurance program that will pay for my child's medical needs? How do I enroll?
How will the Affordable Care Act effect me?
Medicaid has denied payment of some of my child's services. What do I do now?
My child is very medically complicated. How can I best work with her doctors?
My baby is being released from the NICU. What will happen next? Can you tell me about early intervention
services?
Where can I find a support group for families of children with my child's disability?
How can you help us to develop a Family Advisory Committee at our hospital?
Do you have materials appropriate for our growing immigrant community?
We'd like to set up a family-faculty training program. Can you help?
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F2F Health information Specialists (HIS)
PATH/FVCT:
Nora Parry (Spanish Speaking)
Kevin Daly
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Citizens for Quality Sickle Cell Care(CQSCC):
Virginia Pertilliar
Caroline Austin
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North Star:
Cathy Adamczyk
Natalie DiDente
Stacey D'Angelo
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CT Parent Advocacy Center (CPAC):
Brenda Sullivan
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CALL US!!!
1-800-399-7284/203-234-9554
E-mail: pathp2p@pathct.org
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HEALTH RESOURCES
Click on the following links for some interesting health resouces
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 In December 2011, PATH Parent to Parent/Family Voices of CT was named as a member of Lt. Governor Nancy Wyman's Office of Health Reform & Innovation's Consumer Advisory Board. The Office of Health reform & Innovation was started in July 2011 pursuant to legislation that was passed shortly beforehand.
This Consumer Advisory Board will work hand and hand with the Lt. Governor's Health Cabinet and Health Insurance Exchange Board. Together they will advise the Lt. Governor in efforts to coordinate Connecticut’s meaningful and proactive statewide approach to federal health reform. PATH/FVCT will serve as a voice for CT families of children and youth with special health care needs.
The Consumer Advisory Board is currently seeking consumer, parents/caregivers who would like to share their positive or negative stories about access to healthcare and health care services in CT. If interested, please email Nanfi Lubogo at: nanfi@aol.com
Once selected you will be invited to share a 10 minute testimonial before the Consumer Advisory Board at the Legislative Office Building in Hartford.
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